New Drug Therapy Would Give Hope4Bridget and Batten Disease

Posted by Theresa Gralinski, Marketing Director at CorDynamics on May 01st, 2011

A rock concert for rare diseases? What’s to sing about?

Hope.

The Beat Batten & Rock Rare Disease concert given by Jesse Malin and the St. Marks Social in Chicago on July 23 will celebrate hope for awareness, new drug discoveries and specifically Hope4Bridget.

Bridget Kennicott was a spirited, rambunctious three-year old with delayed speech. Nothing rare about that. However her mother, an elementary school teacher and a breast cancer survivor, sensed there was something more. Then the seizures hit. After a marathon of doctors Bridget’s final diagnosis was devastating—Late Infantile Neuronal Ceroid Lipofuscinosis (LINCL) often referred to as Batten Disease. The children slowly deteriorate; the disease is fatal; there is no cure. Research is ongoing and some experimental drugs are currently in a limited clinical trial.

Through friends of friends, we heard about Bridget’s story and have followed her family’s journey to find treatments, causes, comfort and when all else fails—hope.

Developing lifesaving drug therapies for diseases of all magnitudes is what drives us day in and day out at CorDynamics. So why not carry that tune into our nightlife and back the band—so to speak?

Join us. If not that night, please join us in spirit, dedication and most of all—hope. Because where there is hope, there is always a glimmer of joy.

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